Doctors at UW Medical Center have diagnosed Mom with Progressive Multifocal Leukoencephalopathy (PML) and say that the prognosis for non-AIDS patients such as Mom can be better than for AIDS patients. They have asked Mom to consider an experimental treatment using an FDA-approved chemo-therapy drug called Cytarabine. The drug is approved for use with cancer patients but has not yet been approved for use with PML patients. The drug is administered by IV (5-day course) with perhaps 4 weeks between courses. The illness may progress until/unless the treatment takes effect.
We will soon speak to an oncologist who will explain the risks of Cytarabine. We want Mom to make a fully informed decision about whether or not to proceed with this treatment.
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