Treatment Has Not Slowed PML

Yesterday's visit to the leading PML physician in Seattle confirmed that the first round of treatment with Cytarabine is not slowing the disease.

Cytarabine does not repair damage already done by PML. So, even if future treatments stop her PML, Mom would still have to cope with the disabilities that she has at that moment in time. As of today, she has lost a lot, including the use of the left side of her body.

Doctors expect Mom to become increasingly disabled in all respects, so Mom faces complex choices in the days and weeks ahead. She qualifies for Hospice care now, if she wishes it. She is not in pain, thank God.

Although Mom is a disease-fighting champ, let's not assume that she will continue fighting PML. Let's just support her.

We thank all who have written, called, and visited Mom!! In particular, we recognize Barbara, Kay's sister, who quickly came from Michigan; Tim, Andrew's devoted nephew, who traveled from NYC; and, Carolyn, Kay's loving niece, who visited from Philadelphia.